Webinar Nr. 4 MPS and Depression Webinar Strategies to overcome shame and anxiety when meeting new people Meeting new people can be scary, especially if you are dealing with chronic condition. People’s worst fear is that they will be evaluated, judge and rejected. Today, we speak how anxiety appears, how shame shapes us and how …
Webinar Nr. 3 Pain Management Webinar Strategies to overcome shame and anxiety when meeting new people Depression is one of the most common complications of chronic illness. It is estimated that up to one-third of individuals with serious medical condition experience symptoms of depression. In some cases, depression appears to result from specific biologic effects …
The second Adult MPS patients meeting was held from 17th to 20th October 2019 in hotel West Point in Verona, Italy. The goal of this meeting was to encourage adult MPS patients to be independent – stand on their own. Participants age range was between 17 and 55 years from 10 different European countries.
Held in Belgrade, Serbia on 3rd and 4th July 2019. 20 MPS patient advocates representing national MPS societies and adult MPS patients from 12 European and one country from Africa participated.
Local PR & Media agency, AS communications, highly specialized in healthcare and rare diseases performed the training. Team of trainers consisted of PR expert, communicologist, actor, psychotherapist and medical journalist.
The first Adult MPS patients meeting was held on 4th and 5th October 2018 in Maritim hotel Gelsenkirchen, Germany. The goal of this meeting was to encourage adult MPS patients to be independent – stand on their own. This goal was achieved when adult MPS patients exchanged their experiences of living in different European countries and proposed solutions for improving their own lives. Participants age range was between 17 and 53 years from 8 different European countries.
Webinar Nr. 1 Strategies to overcome shame and anxiety when meeting new people Webinar Strategies to overcome shame and anxiety when meeting new people Meeting new people can be scary, especially if you are dealing with chronic condition. People’s worst fear is that they will be evaluated, judge and rejected. Today, we speak how anxiety …
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Webinar Nr. 2 Sexuality Webinar Sexuality and Intimacy Stereotypes about sexuality and people with disability/chronic condition often can be negative, discriminatory and can lead to isolation from emotional/sexual contact. What is sexuality, how we can reborn it and how we can adapt our bodies to another’s presence… Intimacy and sexuality are individualistic, creative and different …
The struggle with pain makes us more fragile I am sure you have heard so many times in your life, “don’t give up, fight for what you want, fight against pain”. You hear people pushing you, you need to be brave, if you quit, you are weak. Thinking about mechanisms and techniques to avoid pain, …
Can too much of optimism be hurtful? Stay positive, keep pushing, motivational quotes like “always smile, dream, believe, achieve” are phrases that people who suffers from chronic illness hear a lot. Getting these messages from environment mean that we always should feel like that, always be happy, smiling with hope that tomorrow will be better.Chronic …
Let’s communicate How do we talk, how do we listen, do we pay too much attention on the other person and forget ourselves, or we are so much into us, that we don’t see people across us?Usually these are not question that we ask ourselves often, it is more question that is shows up after …