Shareholders
Our Shareholders
European non-profit registered patient organisations: MPS Society, Lysosomal Storage Diseases Society or Rare Diseases Organisation, respectively are shareholders of MPS Europe.
Shareholders have voting rights. One European country is represented by one MPS Society or where there is no MPS Society a Lysosomal Storage Diseases Society or Rare Diseases Organisation, respectively.
Each shareholder designates one person to represent it at the Shareholders General Meeting.
Shareholders of MPS Europe are:
🇦🇹 – Gesellschaft für MPS
www.mps-austria.at
Finklham 90, 4612 Scharten
Phone: +43 7249 47795
Contact person: Michaela Weigl, President, Austria@mps-europe.org
🇩🇰 – MPS Danmark
www.mpsdanmark.dk
Viggo Jarls vej 17, 2830 Virum
Contact person:
Thomas Lange
, Denmark@mps-europe.org
🇩🇪 – Gesellschaft für Mukopolysaccharidosen e.V.
www.mps-ev.de
Herstallstrasse 35
63739 Aschaffenburg
Phone: +49 6021 858373
Contact person:
Carmen Kunkel, Executive Director, Germany@mps-europe.org
🇨🇮 – Irish Society for Mucopolisaccharide Diseases
www.mpssociety.ie
Ballymacreese, Ballyneety,
Co. Limerick
Phone: +35387 6493885
Contact person:
Mary Boushel, Hon PRO, Ireland@mps-europe.org
🇮🇹
Associazione italiana mucopolisaccaridosi e malatie affini – AIMPS
www.aimps.org
Via Volta 291
Sanago (MI)
Phone: 39 02 99010 188
Contact person:
Flavio Bertoglio, President, Italy@mps-europe.org
🇭🇺 – Magyar Mucopolisacharidosis Társaság
www.mpstarsasag.hu
Jókai u. 5,
2600 Vác,
Hungary
Contact person:
Monika Demscik, Vice President, Hungary@mps-europe.org
🇳🇱 – VKS
www.stofwisselingsziekten.nl
Phone: +31 38 420 1764
Contact person:
Hanka Dekker, Executive Director, Netherlands@mps-europe.org
🇷🇸 – MPS Serbia
Vukasoviceva 50, 11000 Belgrade
Contact person:
Dragana Miletic Lajko, President, Serbia@mps-europe.org
🇪🇸 – Asociación MPS España
www.mpsesp.org
Av. Barcelona 174
08700 Igualada (Barcelona)
Phone: +34 93 8040959
Contact person:
Ana Mendoza, President, Spain@mps-europe.org
🇸🇪 – Swedish MPS Society
www.mpsforeningen.se
Vetegatan 2
59231 Vadstena
Phone: +46 70 244 24 75
Contact person:
Oskar Ahlberg, Chairman, Sweden@mps-europe.org
🇬🇧 – MPS Society
www.mpssociety.org.uk
MPS House, Repton place,
White Lion Road,
Amersham HP79LP
Phone: +44 345 389 9901
Contact person:
Bob Stevens, Group CEO, UK@mps-europe.org